Parkinson’s Disease Support Groups
Living with Parkinson’s disease can be hard for you and your loved ones. You may want to learn more about the disease, its symptoms and treatments. You may also want to talk to other people who live with Parkinson’s disease. Parkinson’s disease groups can help you. They can teach you about Parkinson’s disease and give you support. Many of these groups have local chapters around the country. Please look to these groups for Parkinson’s disease information and support.
Parkinson’s Disease Foundation (PDF)
This group teaches patients and the public about PD. They help search for a cure. They also find ways to make living with PD easier. This group can refer you to local chapters and support groups. Their Web site has news about PD and an “Ask the Expert” feature.
1-800-457-6676
www.pdf.org
American Parkinson Disease Association (APDA)
This group teaches patients and provides support. They also inform the public about PD through events and fund-raisers. This group has many chapters and can refer you to local support groups.
1-800-223-2732
www.apdaparkinson.org
National Parkinson Foundation (NPF)
This is the largest group for people with PD and their loved ones. They can teach you about PD and tell you about new research, events, and support groups. This group also provides caregivers of PD patients with helpful tips and real-life stories. The Web site for caregivers is: www.parkinsonscare.com.
1-800-327-4545
www.parkinson.org
Michael J. Fox Foundation for Parkinson’s Research
Michael J. Fox has PD. He started this group to teach patients and caregivers about living with PD. Their Web site and newsletter can keep you up-to-date on PD research, news and events.
1-800-708-7644
www.michaeljfox.org
The Parkinson Alliance (PA)
This group supports PD research. Their Web site includes news and updates on research and events. This group provides links to other PD sites.
1-800-579-8440
www.parkinsonalliance.net/home.html
The Parkinson’s Web
This Web site links you to private groups, government aid, and health centers. It can connect you to support groups for PD patients and families.
www.pddweb.mgh.harvard.edu
Parkinson’s Action Network (PAN)
PAN raises money to find a cure for PD. Their Web site provides updates on all efforts related to PD.
1-800-850-4726
www.parkinsonsaction.org
Family Caregiver Alliance (FCA)
This group helps people who care for patients at home. Their Web site provides online talks, support, and news on public policy. They also offer help on how to provide long-term care.
1-415-434-3388
www.caregiver.org
National Alliance for Caregiving (NAC)
This group supports caregivers and the health care workers who help them. They also teach the public about issues facing caregivers today.
1-301-718-8444
www.caregiving.org
National Family Caregivers Association (NFCA)
This group teaches caregivers and offers support. They also inform the public about caregiver issues. Their goal is to inform caregivers on how to help patients keep a good quality of life.
1-800-896-3650
www.nfcacares.org
The Michael J. Fox Foundation
The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today.
http://www.michaeljfox.org/index.cfm
TEAM FOX
Team Fox was launched in January 2006 as a way for The Michael J. Fox Foundation to support the heroes all over the country who already had made it their personal mission to find uniquely creative and fun ways to raise funds for Parkinson’s research. Team Fox provides guidance, tools and resources for the thousands of amazing people all over the world who are walking, running, baking, party planning, paddling, pedaling, and dancing to raise funds and awareness for Parkinson’s research.
http://www.teamfox.org/
S A N A N T O N I O —
Young Onset Parkinson’s Disease Support Group
Alamo Heights United Methodist Church
825 E. Basse Road, Classroom W103
San Antonio, TX 78209
Third Saturday Every Month at 10:00am
Tel: (210) 487-0131 or (210) 274-6884
Young Onset Support Group Flyer
Warm Springs’ Support Groups
Contact PAM for additional information, dates, times and locations
5101 Medical Dr, San Antonio, TX 78229
Contact: Melinda Rodriguez (210) 724-4296 or email: mrodriguez@AQTSHH.com
Tel: (210) 616-0100
Warm Springs Website
More Than Boxing: Kicking Parkinson’s Butt
Contact them for meeting times, dates and locations.
Watch a clip that Channel 4 did on us here: NEWS 4 San Antonio
Contact: steve@morethanexercise.com for pricing & more details
Tel: 210-884-2072
Website: http://morethanexercise.com/morethanboxing-com/
Click here for a video: Rock Steady Boxing Video
C O R P U S C H R I S T I —
YMCA of Corpus Christi
4601 Corona Drive
Corpus Chris, TX 78401
Contact them for meeting times and dates.
Tel: 361-857-5661
B O E R N E —
Hills of Texas Parkinson Support Group Meeting
Contact them for meeting times and dates.
Rainbow Senior Center at Kronkosky Place
17 Old San Antonio Road
Boerne, Texas 78006
For more information contact: Michael Heatherley (210) 291-6750
email: boernepdgroup@gmail.com
C O M A L C O U N T Y —
Lone Star Parkinson Society Comal County Parkinson Support Group
Contact them for meeting times and dates.
Oakwood Baptist Church Adult Education Building
2154 Loop 337, New Braunfels Texas 78130
Website: http://www.LoneStarParkinsonSociety.com
Tel: (432) 352-4758 Vicki Mercer, Treasurer
K E R R V I L L E —
Kerrville Parkinson’s Support Group
Contact them for meeting times and dates.
Peterson Regional Medical Center
Classroom A, 2nd Floor
551 Hill Country Drive
Kerrville, TX 78028
Tel: (361) 813-6410
Click Here for Kerrville’s Support Group Flyer
S C H E R T Z | U N I V E R S A L C I T Y —
First United Methodist Church
in Universal City meets on the First Thursday of every month at 1:00pm.
90 Winn Avenue
Universal City, Texas
Tel: (314) 681-9783 Contact: Bob Baldwin
Web: www.sapsg.org
W I M B E R L E Y —
Chapel in the Hills Church (Caregivers are welcome)
Meets on the 3rd Monday of every month from 9-11am
14601 Ranch Road 12 (across from Dairy Queen)
Wimberley, TX Guest speakers and discussions.
Tel: (361) 265-8161
Dallas Dystonia Support Group
Callier Center for Communication Disorders
Building J, Room 108
1966 Inwood Road
Dallas, TX 75235
Peggy Akin at peggyakin@gmail.com or call Leta at (972) 223-2377 or email
dystoniadallas@yahoo.com
San Antonio Huntington’s Disease Support Group
Monthly meetings on Saturday from 12 Noon to 2:30pm
At North Central Baptist Hospital in the Garrett Room to the left as you enter cafeteria on the ground level of the hospital.
For more information contact: Gerleine A. Schoonover at 210-452-2567 or 210-691-0047
Email: CUREHDNOW@AOL.COM
Texas Affiliate
P. O. Box 100961
San Antonio, TX 78201